Disability & Health Resources
A site devoted to the positiveness in death, dying, bereavement, AIDS,
The ALS Association seeks to promote awareness and understanding of ALS
and the work of The ALS Association by providing up-to-date information
and education materials to the ALS community.
ALS March of Faces
The ALS March of Faces is a patient/caregiver governed and operated non-profit
organization, dedicated to heightening public awareness of ALS, and advocating
on issues that concern and/or benefit PALS (People with ALS).
The ALS Survival Guide is dedicated to all people with ALS or Amyotrophic
Lateral Sclerosis, also known as Lou Gehrig's Disease, or MND, Motor Neurone
A site created by an MD to help women estimate their risk of getting breast
cancer. Has links to other helpful sites.
The Buddhist AIDS
Based in San Francisco, California, provides free information and referral
to Buddhist resources and events and to current HIV/AIDS information and
alternative medical services.
Go Ask Alice!
Is the health question and answer Internet site produced by Alice!, Columbia
University’s Health Education Program—a division of the Columbia University
Head Injury Hotline
A non profit clearinghouse founded and operated by head injury activists
since 1985. It is a place where visitors can get information, join a discussion
group, build advocacy skills, and self-care skills. The site integrates
resources from diverse organizations including support groups, rehabilitation,
and research sites, as well as lay and professional journals and more.
Health Program (IHP NET)
Extensive health resources
A call-to-action campaign to improve care at the end of life.
Les Turner ALS Foundation
The Les Turner ALS Foundation is the nation's largest independent publicly
supported non-profit organization devoted to the treatment and elimination
of amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig's disease.
The Foundation supports the ALS community in Chicago and its suburbs and
is affiliated with Northwestern University Medical School.
(MDS) and Sideroblastic Anemias (SA)
A website by a lay person with several family members affected by these
rare blood disorders.
Institute of Nursing Research Report on End-of-Life
A report summarizing the findings of a two-day National Institutes of
Health (NIH) workshop, "Symptoms in Terminal Illness."
Needs Family Fun
Offers family fun and special needs resources to enhance the fun and quality
of family life for families with disabilities.